EKPF attends d.Holiday 2022 Conference in Rome On 3 May, the EKPF went to Rome to attend the Diaverum holiday dialysis d.Holiday 2022 Conference. This conference was a great opportunity to bring together patient associations, academics and Diaverum representatives to talk again about travel and dialysis in the post-pandemic era. We enjoyed some very interesting
EKPF participates in the WHO Advisory Group on People Living with Non-Communicable Diseases The World Health Organization's Global Coordinating Mechanism for Noncommunicable Diseases (GCM/NCD) is developing a Framework Document for the involvement of people living with Noncommunicable Diseases (PLWNCD) and mental health conditions (MHC) that will guide WHO and European Member States in the meaningful
The EKPF begins interviews with all its members to get to know the entities first hand. 18 March 2022 One of the key points of the EKPF's new project for 2022, the KEEP ON project, is to get to know the entities first hand. Therefore, we started with interviews with each organisation to find out
Information about dialysis in Ukraine 3 March 2022 The EKPF has tried to collect information on solutions for kidney patients in the countries bordering Ukraine. In the following documents you will find important information about contacts with dialysis centres. If anyone has contacts in Ukraine who might be interested, it would be great to pass
EKHA & EKPF open letter ‘Protecting Chronic Kidney Disease patients amid the conflict in Ukraine’ 2 March 2022 In the wake of the escalating conflict in Ukraine, the European Kidney Health Alliance (EKHA) and the European Kidney Patients’ Federation (EKPF) published an open letter to Ms Stella Kyriakides, EU Commissioner for Health and Food
The European Kidney Patients’ Federation strongly condemns the war in Ukraine and offers its full support to kidney patients, their families and healthcare professionals. Unfortunately, all the bad predictions have come true and the war in Ukraine is already a sad daily news story. In such situations, it is the most vulnerable who suffer
Today EKHA is launching a set of recommendations to tackle Chronic Kidney Disease (CKD) at EU level together with its partners: the French nephrology and patient societies: Société Francophone de Néphrologie, Dialyse et Transplantation (SFNDT), France Rein, and Renaloo. The Ministerial Conference on the Resilience of Health Systems to Support Cooperation on a European Scale,
The EKPF held a new webinar to discuss abour Rare Kidney Diseases. We had the opportunity to have Dr. Jonathan Barrat, leader of the Renal Research Group withing the college of Life Sciences (University of Leicester); and Francisco Monfort, president of ASHUA (Atypical Haemolytic Uremic Syndrome Association). As moderator, we have Tess Harris, president of
On 9th and 10th December, the European Kidney Patients’ Federation (EKPF) will hold two meeting days in Madrid. The first of them will be entitled “ANNUAL SUMMIT OF KIDNEY PATIENTS: Training session”, in which industries and entities of the EKPF will discuss the latest advances in chronic kidney disease. On Friday, December 10th, the General
Daniel Gallego, President of the EKPF, attended a meeting yesterday with John F. Ryan, Director of Public Health, Directorate for Health and Food Safety of European Commission. The purpose of the meeting was to present the problems of people with kidney disease in terms of nutrition and its relationship with the progression of the
