Interactive country dashboards will be available shortly.

We would like to sincerely thank all the people living with a rare kidney disease and their caregivers who completed the barometer survey by sharing their unique experiences and the group of experts who contributed to this barometer by sharing their experiences and expertise.  

The Rare Kidney Diseases Barometer was initiated and funded by Sobi (Swedish Orphan Biovitrum AB). Weber Shandwick were commissioned by Sobi and provided operational support, including project management, survey administration, data anonymisation, analysis and drafting. The Expert Advisory Group retained full and independent responsibility for the editorial content.