ProCKD:Exchanging good practices for the PRofessional integration of adults with Chronic Kidney Disease
Patients with CKD (Chronic Kidney Disease) or ESRD (End Stage Renal Disease) face many barriers to remaining in or joining the workforce, especially after starting dialysis treatment.
These barriers include poor employment opportunities because of disadvantaged socioeconomic status, fatigue and other symptoms of renal failure, depression and feelings of social isolation, comorbid diseases, transportation issues, potential loss of disability and/or medical assistance benefits with employment, scheduling conflicts with dialysis, and the assumption by some employers that patients on dialysis are too sick or undependable to work.
This societal perception that patients with ESRD are unable to work completes a vicious cycle of low expectations for employment. For employment-preserving strategies to succeed, there must be a fundamental change in the way that health care is delivered to vulnerable populations, with improved disease management and funding for the social services required to overcome the employment disincentives. Improving access to medical care, including early evaluation by a nephrologist; availability of home dialysis modalities; proper patient preparation, including integrated pre-dialysis education models; and encouraging vocational rehabilitation are possible interventions to assist patients in rejoining or remaining in the workforce.
The ProCKD project is focused on the needs and problems of patients from Spain, Turkey, Greece, and the Netherlands. More specifically the focus will be on how the working patients can continue their employment after initiation of dialysis, on how to be encouraged to continue training and education, and on how unemployed patients can be assisted in finding meaningful work. Understanding the factors influencing employability can help patients have a more fulfilling professional life.
We are sharing good relevant practises with our European partners and promote educational and professional reintegration of adults with chronic kidney disease by organising free webinars and meetings. The ProCKD project will serve as an educational program for adults with kidney disease, their caregivers and proffesionals. The upcoming information will be uploaded on the project website: www.prockd.eu and on our social media.
On April 28, the Kick-off Meeting and an Expert Panel with active Kidney Patients will be held through the Zoom platform, both open to all interested people who want to know the experience of the Consortium members in this important theme.
ProCKD Kick Off Meeting Agenda
April 28. 2021. 13:00 CET time
13.00 p.m. Collaborating entities presentations: activity of partner organizations related to employment in groups of disadvantaged people (10 Minutes each presentation)
16.00 p.m. Focus group with Patient Advisory Board Patient Advisory Board presentation. Partners, and other attendees will be able to ask questions or comment through the chat.
(40 minutes, 10 minutes each presentation)
Round table: Discussion about possible ways of improvement or solutions to problems.
– Participants : Paulo Zoio (Portugal), Marta Moreno (Spain), Manuel Arellano (Spain) and Michalis Sekadakis (Greece) and Spyridon Zormpas (Greece)