On 25 and 26 October, CSL Vifor, a EKPF sponsor, held its internal leadership meeting at its headquarters in Switzerland. Among the topics discussed with its employees was the relationship with a key stakeholder group for this company, namely people with chronic...
During our Annual General Assembly 2022, the new Manifesto was updated. This document contains all our claims and statements and the aim is to keep updating it with new developments. You can read the full Manifesto here: Manifesto
On 20-21 October the EKPF held its Annual Summit in Athens. Many insights and learnings on timely topics related to kidney disease were discussed. It was a fantastic opportunity to come together. The agenda was very complete and full of interesing topics Also, the...
EKPF is full member of the International Kidney Cancer Coalition and as such was present at the Global Kidney Cancer Summit 13-15 October in Milan. The agenda was full of interesting topics and current issues affecting the kidney community, especially focused on...
aHUS Awareness Day Today is aHUS Awareness Day! We are proud to support aHUS alliance this 24th September to raise visibility about the Atypical Hemolytic Uremic Syndrome (atypical HUS).Atypical HUS is a rare form of thrombotic microangiopathy (TMA) which impairs...
FEDERG reviews and updates their strategy at its annual meeting FEDERG, Federation of European Patients’ Groups Affected by Rare/Genetic Diseases, a member of the EKPF, met in Valencia to review the organisation’s strategy to achieve its objectives. The...
Living Well With Kidney Disease and Effective Symptom Management: Consensus Conference Proceedings Chronic kidney disease (CKD) confers a high burden of uremic symptoms that may be underrecognized, underdiagnosed, and undertreated. Unpleasant symptoms, such as...
PKD Awareness Day PKD Awareness Day is dedicated to raising awareness and support for people living with polycystic kidney disease.Polycystic kidney disease (PKD) is a chronic, genetic disease causing the uncontrolled growth of cysts in the kidney, eventually leading...
Robert Teržan, member of the Slovenian Association of Kidney Patients’ Associations, has passed away. Today we have learned of the sad news of the passing away of Robert Teržan. Robert Teržan was born in Celje in 1961 and struggled with kidney disease all his...
