EKPF Brings the patient voice to ERA 2025 Panel on organ donation after assisted suicide/euthanasia Daniel Gallego Zurro, President of the European Kidney Patients’ Federation (EKPF), participated as a speaker at the ERA 2025 Congress in Vienna, contributing to one of...
We’re at ERA 2025 – Come Meet EKPF in Vienna! The European Kidney Patients’ Federation (EKPF) is attending the European Renal Association (ERA) Congress 2025 in Vienna! For the next three days, you’ll find us at booth X1.225. Drop by to get to know our work, the...
Registration Now Open for the EKPF Annual Summit and General Assembly 2025 in Milan! We are pleased to announce that registration is now open for the EKPF Annual Summit and General Assembly 2025, which will take place on November 4th and 5th in the vibrant city of...
Historic Victory for Kidney Health: WHO Adopts Landmark Global Resolution The International Society of Nephrology (ISN), supported by the European Kidney Patients’ Federation (EKPF) and other stakeholders, celebrates a milestone achievement as the World Health...
EKPF Participates in ERKNet’s European Meeting to Strengthen the Voice of Rare Kidney Disease Patients The annual meeting of ERKNet, the European Rare Kidney Disease Reference Network, was held in Leuven, Belgium. This important forum brings together healthcare...
🎥 Horizon Project “geneTIGA” Launches Educational Video on IgA Nephropathy and Innovative Gene Editing Therapy We are thrilled to announce the release of geneTIGA video, designed to engage and educate the general public, including patients and school...
New Publication Highlights the Humanistic Burden of IgA Nephropathy We are pleased to share the publication of a new study titled “The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States,” in which Daniel Gallego,...
We are deeply saddened to hear of the passing of our colleague Henning Søndergaard. Henning was a passionate advocate for the rights of kidney patients, deeply committed to improving communication between healthcare professionals and patients, drawing from his...
geneTIGA Launches Educational Video: A New Hope for People with IgA Nephropathy We’re excited to announce the launch of the new geneTIGA educational video, created to raise awareness and understanding of IgA nephropathy (IgAN) and the innovative research that aims to...
