🎥 Horizon Project “geneTIGA” Launches Educational Video on IgA Nephropathy and Innovative Gene Editing Therapy We are thrilled to announce the release of geneTIGA video, designed to engage and educate the general public, including patients and school...
New Publication Highlights the Humanistic Burden of IgA Nephropathy We are pleased to share the publication of a new study titled “The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States,” in which Daniel Gallego,...
We are deeply saddened to hear of the passing of our colleague Henning Søndergaard. Henning was a passionate advocate for the rights of kidney patients, deeply committed to improving communication between healthcare professionals and patients, drawing from his...
geneTIGA Launches Educational Video: A New Hope for People with IgA Nephropathy We’re excited to announce the launch of the new geneTIGA educational video, created to raise awareness and understanding of IgA nephropathy (IgAN) and the innovative research that aims to...
EKPF attends the IKCC Annual Summit 2025 in Madrid This past weekend, the EKPF had the pleasure of attending the International Kidney Cancer Coalition (IKCC) Annual Summit, held in Madrid. The theme for this year’s summit – Building Evidence-Based Advocacy...
IgAN Friends – A new European community for people living with IgA Nephropathy We are excited to announce the launch of IgAN Friends, a European platform created to support, connect and empower people living with IgA Nephropathy (IgAN). This initiative has been...
EKPF Supports the ReSHAPE Project in Advancing Immunotherapy EKPF has been actively engaged with the ReSHAPE project, a groundbreaking initiative funded by the European Union’s Horizon 2020 program, aimed at revolutionizing treatments for patients facing immune and...
Krew Camp 2025: Join Us in Portugal! Krew Camp 2025: Join Us in Portugal! We are excited to announce Krew Camp 2025, taking place from July 6th to 12th in Óbidos, Portugal, in collaboration with APIR. Camp Highlights Activities: Canoeing, swimming, climbing, and more,...
EKPF participates in the European Kidney Forum 2025 at the European Parliament On January 28, EKPF attended the European Kidney Forum 2025, held at the European Parliament and organized by EKHA, with the support of the MEP Group for Kidney Health and co-hosted by MEPs...
