Historic Victory for Kidney Health: WHO Adopts Landmark Global Resolution The International Society of Nephrology (ISN), supported by the European Kidney Patients’ Federation (EKPF) and other stakeholders, celebrates a milestone achievement as the World Health...
EKPF Participates in ERKNet’s European Meeting to Strengthen the Voice of Rare Kidney Disease Patients The annual meeting of ERKNet, the European Rare Kidney Disease Reference Network, was held in Leuven, Belgium. This important forum brings together healthcare...
🎥 Horizon Project “geneTIGA” Launches Educational Video on IgA Nephropathy and Innovative Gene Editing Therapy We are thrilled to announce the release of geneTIGA video, designed to engage and educate the general public, including patients and school...
New Publication Highlights the Humanistic Burden of IgA Nephropathy We are pleased to share the publication of a new study titled “The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States,” in which Daniel Gallego,...
We are deeply saddened to hear of the passing of our colleague Henning Søndergaard. Henning was a passionate advocate for the rights of kidney patients, deeply committed to improving communication between healthcare professionals and patients, drawing from his...
geneTIGA Launches Educational Video: A New Hope for People with IgA Nephropathy We’re excited to announce the launch of the new geneTIGA educational video, created to raise awareness and understanding of IgA nephropathy (IgAN) and the innovative research that aims to...
EKPF attends the IKCC Annual Summit 2025 in Madrid This past weekend, the EKPF had the pleasure of attending the International Kidney Cancer Coalition (IKCC) Annual Summit, held in Madrid. The theme for this year’s summit – Building Evidence-Based Advocacy...
IgAN Friends – A new European community for people living with IgA Nephropathy We are excited to announce the launch of IgAN Friends, a European platform created to support, connect and empower people living with IgA Nephropathy (IgAN). This initiative has been...
EKPF Supports the ReSHAPE Project in Advancing Immunotherapy EKPF has been actively engaged with the ReSHAPE project, a groundbreaking initiative funded by the European Union’s Horizon 2020 program, aimed at revolutionizing treatments for patients facing immune and...
